A A Canadian couple decided to travel the world with their four children before three of them, suffering from a rare genetic disease, were blinded.
THE the search for “visual memories” began in March this year and is expected to last a year. The first destination was namibia in South West Africa.
So far they have visited countries like ZambiaTanzania, Turkey and Mongoliaplace where they stayed more than 30 days and left on the 31st to go to the beaches of Indonesia.
A couple travels the world before their children lose their sight to a rare disease – Photo: Reproduction / Instagram The world in their eyes
The family’s journey is shared through social networks on the account “The world full their eyes” (the world fills your eyes, in Portuguese).
The family visited Mongolia, where they stayed for more than 30 days — Photo: Reproduction / Instagram The world in their eyes
In the posts made on Instagram, they say that the start of the trip around the world was planned for 2020. However, the plans had to be postponed due to the pandemic.
In the meantime, they have made trails and tours through the Canada.
The family will travel around the world for a year — Photo: Reproduction / Instagram The world in their eyes
In an interview with “CTV News”, the couple Edith Lemay and Sébastien Pelletier tell that their eldest daughter, Mia, began to have vision problems at the age of 3 years.
Years later, she, now 12, was diagnosed with retinitis pigmentosaa a degenerative inherited condition that usually begins to show in childhood, causing vision loss or decline over time.
“There’s nothing you can really do. We don’t know how fast it’s going to happen, but hopefully they’ll go completely blind in middle age,” Edith said in the interview.
Due to the pandemic, the family began to criss-cross cities in Canada – Photo: Reproduction/Instagram The world in their eyes
Two of the couple’s other children, Colin and Laurent, also showed similar symptoms. In 2019, it was confirmed that the brothers, who are now 7 and 5, also had the genetic problem. The eldest son, Leo, 9, has not been diagnosed with the disease.
According to the family, there is currently no cure or treatment to slow the progression of the disease and the deterioration of the sight of the three children is likely to accelerate in adolescence.
The family has already visited several countries in search of expanding “visual memories” — Photo: Reproduction / Instagram The world full of their eyes
After the diagnosis, the couple sought out a specialist, who guided them to improve the “visual memories” of the children.
“I said to myself, ‘I’m not going to show him an elephant in a book, I’m going to take him to see a real elephant and I’m going to fill his visual memory with the best and most beautiful images that I can. ‘”, said the mother.
That’s when they had the idea to do it while traveling the world.
“Especially big and wide spaces, because that’s something they will miss,” Lemay told CTV News.
The family begins the first tours in Canada and then travels to other countries — Photo: Reproduction / Instagram The world full of their eyes
Recordings shared on social media, usually made by the mother, show that so far the plan is working and in Zambia they have managed to observe an elephant for 30 seconds.
A family managed to observe an elephant in Zambia – Photo: Reproduction/Instagram The world in their eyes
Photos and videos show children climbing the surface of huge boulders in Namibia, playing in the sea in freshwater pools in Tanzania, enjoying mountainside pools in Turkey and in Gobi they slept under a starry sky without city lights.
Family trip to Turkey — Photo: Reproduction / Instagram The world in their eyes
THE retinitis pigmentosa results in progressive degeneration of photoreceptorseye cells that convert light into nerve impulses, then processed by the retina and sent to the brain through nerve fibers.
The disease first causes the degeneration of the photoreceptors responsible for night vision – the cells called rods – and then those responsible for daytime vision – the cones.
But while the disease destroys the rods, the cones survive in the body, even after blindness.
Starry sky of Gobi — Photo: Reproduction / Instagram The world in their eyes
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