Understanding Celine Dion’s Rare Disease, Rigid Person Syndrome

iG montage / Images: reproduction / Instagram – 08.12.2022

Singer Celine Dion shared a story on social media saying she had been diagnosed with the syndrome

canadian singer Celine Dion
revealed he was diagnosed with stiff person syndrome, or rigid person syndrome (RPS), in a report shared on social media. The state is a rare neurological disease
which causes progressive muscle stiffness and painful spasms.

“I’ve been dealing with health issues for a long time and it’s been very difficult for me to deal with those challenges and talk about all that I’ve been through,” he said. Celine
in a video posted Thursday (8).

“While we are still learning about this condition, we now know that this is what caused all the spasms I have,” reported the singer, who canceled eight shows she would be doing in 2024 and took some. postponed part to 2024.

The SPR is a autoimmune disease
and the exact causes are still being investigated.

The syndrome affects one in 800,000 people and is associated with other autoimmune diseases, such as thyroiditis
🇧🇷 Diabetes
type 1 and vitiligo
, explains Dr. Roger Gomes, neurologist at the Ambulatory Medical Assistance (AMA) Especialidades Jardim São Luiz, managed by “Dr. João Amorim” (CEJAM) in partnership with the Municipal Health Secretariat of São Paulo.

In general, the condition is more common after the age of 50 and in women, at a rate of 60%, specifies the doctor.

In the recording, Celine said that the spasms
caused by the disease affected her daily life in many ways, causing difficulties ranging from walking to using her vocal cords to sing like she was used to.

According to the doctor. Karin Mitiyo Corrêa, neurologist at Clínica Gravital São Paulo of the Federal University of São Paulo (Unifesp), the spasms
felt by Céline can be triggered by very loud noises or even light contact on the skin. They can still be felt in the abdomen and respiratory muscles and can lead to respiratory failure.

Some patients, according to the neurologist, even develop anxiety
and afraid to leave the house.

In some cases, the PSR
it can affect just one area of ​​the body, in others it can cause abnormal movements, incoordination, difficulty speaking and swallowing, and paralysis of the eyes.

Depending on the condition, the disease may be related to lung cancer
and Breast
🇧🇷

“Symptoms can vary from person to person and, if left untreated, can lead to difficulty walking and moving. They can also progress from month to year, remain stable or slowly worsen” , explains Correa.

In most cases, the disease
starts with muscle discomfort, stiffness in the spine and legs, and can affect the hips, neck and shoulders. Over time, the person begins to experience difficulty in locomotion, bending over and tending to fall.

The treatment for stiff person syndrome
It’s focused on relieving symptoms of muscle pain and stiffness with medication, but it’s also done with immune therapy, involving human immunoglobulin infusion and immunosuppression, says neurologist Dr. Hennan Salzedas Teixeira at the Beneficência Portuguesa Hospital in São Paulo and at the Institute of Neurological Sciences (ICNE).

Last year the the singer had previously canceled shows she would do in Las Vegas, USA, due to spasms
– at the time, however, she did not disclose the diagnosis.

In a late 2021 statement, Celine reported that doctors were evaluating the condition and had already started treatment, but the symptoms precluded her from participating in rehearsals and performing.

Recovery, according to Teixeira, is usually not complete and can progress to functional loss, even after the start of appropriate treatment.

“There are case reports of improved stiffness with the use of cannabidiol
but we have no scientific evidence to systematically recommend this type of treatment”, specifies the neurologist.

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Grayson Saunders

"Typical thinker. Unapologetic alcoholaholic. Internet fanatic. Pop culture advocate. Tv junkie."

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